A Sooke mother says she’s at her wits’ end after her sick son was denied coverage for an expensive drug for the third time.
Six-year-old Landen has Systemic Juvenile Idiopathic Arthritis (sJIA), a rare form of the arthritis that leaves the boy in constant pain and can even cause death.
She’s been fighting to get coverage for a drug called Canakinumab, which comes with an annual price tag of more than $225,000.
His mother, Jillian Lanthier, said the disease has transformed her son from an avid BMX rider to someone who uses a walker, takes constant pain medication and is often bed ridden.
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Lanthier told Global News she’s still waiting to learn why Landen was again denied the medicine she says could relieve symptoms like fever and swollen joints.
“It’s a very hard pill…