Rare Diseases

FINDING A CURE: Family holds fundraising event for rare disease

Thursday ABC-7 introduced you to Emma Boggs, an El Paso toddler diagnosed with a rare disease. Emma has a rare form of Mitochondrial disease called Leigh Syndrome. The disease may eventually lead to organ failure. It has no treatment and no cure.

Saturday the family held an event to raise money for research. Get Lifted Gym hosted the event. They sold t-shirts and wristbands….