Rare Diseases

Rare Disease Report® To Present Live Coverage of Paroxysmal Nocturnal Hemoglobinuria Awareness Week

CRANBURY, N.J.–(BUSINESS WIRE)–Rare Disease Report® (RDR), the digital component of Rare Disease Communication® will provide live coverage of Paroxysmal Nocturnal Hemoglobinuria (PNH) awareness week from September 17 to 23. RDR will provide readers with the latest information on the disease space, emerging research and ways to become an advocate.

“We are thrilled to be part of PNH Awareness Week,” said James Radke, Ph.D., managing editor of Rare Disease Report. “Blood clots, including deep vein thrombosis, are a common problem for people with PNH and they can be silent killers. Awareness leads to early detection and that timely recognition can get patients the necessary care.”

Rare Disease Report® will share informational content on its website and social media platforms, to spread awareness and provide insights on PNH. This recognition week focuses on educating those who may not know about the disease and highlighting…